Abstract
In patients with neuromuscular diseases (NMDs), respiratory conditions
represent a relevant threat which can progressively impacts on their quality of
life. Non Invasive Ventilation (NIV) has been shown to significantly improve
respiratory parameters and to extend survival in patients affected by different
NMDs. Although once therapy is undertaken, an improvement is generally
detected, its impact on both psychological factors and quality of life is frequently
mentioned and less studied. Nevertheless, underestimating the quality of life of
NMDs patients can influence both the kind of therapies and the ways through
which they are offered. An accurate assessment of quality of life and the involved
psychological factors should be undertaken routinely before offering patients the
option to undertake NIV and during follow ups.
Lingua originale | English |
---|---|
Titolo della pubblicazione ospite | Respiratory Disorders in Neuromuscular Disease: Management and Practice Principles |
Pagine | 557-567 |
Numero di pagine | 11 |
Volume | 2021 |
Stato di pubblicazione | Pubblicato - 2021 |
Keywords
- Health Related Quality of Life (HRQoL)
- Neuromuscular Disease (NMD)
- Non Invasive Ventilation (NIV)
- Quality of Life (QoL)