Abstract
The study aimed to explore the experiences of people with neuromuscular and chronic respiratory diseases and their caregivers concerning tracheostomy management at home during the Covid-19 health emergency in Italy. In a multiple case study approach, we sought perspectives through semi-structured interviews of caregivers and patients with neuromuscular or chronic respiratory diseases and tracheostomy. In addition, the following instruments were used: Connor and Davidson Resilience Scale (CD-RISC-25), to detect resilience; Acceptance and Action Questionnaire-II (AAQ-II), to detect flexibility; State-Trait Anxiety Inventory (STAI), to detect trait anxiety; Langer Mindfulness Scale (LMS), to measure dispositional mindfulness; Zarit Burden Interview (ZBI) to detect caregiver’s burden. Qualitative analyses, based on Interpretative Phenomenological Analysis (IPA), were used to identify themes, sub-themes, frequency of words and metaphors. Twenty-two patients [50% female, Mean age=50.2±21.2] and 52 caregivers [62.3% female, Mean age 52.2±1.22] took part in the study. The demonstration of a relationship between resilience, flexibility, anxiety, and dispositional mindfulness offers the opportunity to reinforce the management of tracheostomy at home, even in emergency periods.
Lingua originale | English |
---|---|
Titolo della pubblicazione ospite | Book of Abstract. 30º Congresso dell’Associazione Italiana di Psicologia |
Pagine | 1-1831 |
Numero di pagine | 1831 |
Volume | 2022 |
Stato di pubblicazione | Pubblicato - 2022 |
Evento | XXX Congresso AIP (tutte le sezioni) – Padova 27-30 settembre 2022 - Padova -- ITA Durata: 27 set 2022 → 30 set 2022 |
Convegno
Convegno | XXX Congresso AIP (tutte le sezioni) – Padova 27-30 settembre 2022 |
---|---|
Città | Padova -- ITA |
Periodo | 27/9/22 → 30/9/22 |
Keywords
- Neuromuscular disease
- chronic respiratory disease
- experiences
- psychosocial factors
- tracheostomy