Reliability of the Hammersmith functional motor scale for spinal muscular atrophy in a multicentric study

  • Eugenio Maria Mercuri*
  • , S. Messina
  • , R. Battini
  • , A. Berardinelli
  • , P. Boffi
  • , R. Bono
  • , C. Bruno
  • , N. Carboni
  • , C. Cini
  • , F. Colitto
  • , A. D'Amico
  • , C. Minetti
  • , Massimiliano Mirabella
  • , T. Mongini
  • , L. Morandi
  • , N. Dlamini
  • , S. Orcesi
  • , M. Pelliccioni
  • , Marika Pane
  • , A. Pini
  • A. V. Swan, M. Villanova, G. Vita, M. Main, F. Muntoni, E. Bertini
*Autore corrispondente per questo lavoro

Risultato della ricerca: Contributo in rivistaArticolo

Abstract

The aim of this study was to validate the Hammersmith functional motor scale for children with spinal muscular atrophy in a large cohort of 90 non-ambulant children with spinal muscular atrophy type 2 or 3. All had a baseline assessment (T0) and were reassessed either at 3 months (T1) (n=66) or at 6 months (T2) (n=24). Inter-observer reliability, tested on 13 children among 3 examiners, was >95%. Of the 66 children examined after 3 months 4 had adverse effects in between assessments and were excluded from the analysis. Forty-two (68%) of the remaining 62 reassessed had no variation in scores between T0 and T1 and 13 (21%) were within ±1 point. 9 (37.5%) of the 24 children reassessed after 6 months had no variation in scores between T0 and T2 and another 9 (37.5%) had variations within ±1 point. Our study confirms previous observations of the reliability of the scale and helps to establish a baseline for assessing changes of functional ability over 3 and 6 month intervals. This information can be valuable in view of therapeutic trials. © 2005 Elsevier B.V. All rights reserved.
Lingua originaleInglese
pagine (da-a)93-98
Numero di pagine6
RivistaNeuromuscular Disorders
Volume16
Numero di pubblicazione2
DOI
Stato di pubblicazionePubblicato - 2006

All Science Journal Classification (ASJC) codes

  • Pediatria, Perinatologia e Salute del Bambino
  • Neurologia
  • Neurologia (clinica)
  • Genetica (clinica)

Keywords

  • Clinical trial
  • Functional abilities
  • Hammersmith functional motor scale
  • Reliability
  • SMA
  • Validation

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