Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Eugenio Maria Mercuri, Sonia Messina, Jacqueline Montes, Francesco Muntoni, Valeria A. Sansone, Laura Antonaci, Matt Civitello, Giorgia Coratti, Mencia De Lemus, Roberto De Sanctis, Marcus Droege Avexis, Tina Duong, Richard Finkel, Anna Lia Frongia, Ksenija Gorni Roche, Chad Heatwole, Nicole Gusset, Erik Henricson, Anna Mayhew, Chiara MarchesiAmy Pasternak, Astrid Pechmann, Maria Carmela Pera, Ivana Rubino, Valeria Sansone, Mary Schroth, Dylan Trundell, Volker Straub

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Nursing and Health Professions