Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Eugenio Maria Mercuri; S. Messina; J. Montes; F. Muntoni; V. A. Sansone; L. Antonaci; M. Civitello; Giorgia Coratti; M. D. Lemus; R. D. Sanctis; M. D. Avexis; T. Duong; R. Finkel; A. L. Frongia; K. G. Roche; C. Heatwole; N. Gusset; E. Henricson; A. Mayhew; C. Marchesi; A. Pasternak; A. Pechmann; M. C. Pera; I. Rubino; V. Sansone; M. Schroth; D. Trundell; V. Straub

doi:10.1016/j.nmd.2020.02.019

Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Eugenio Maria Mercuri^*
, S. Messina
, J. Montes
, F. Muntoni
, V. A. Sansone
, L. Antonaci
, M. Civitello
, Giorgia Coratti
, M. D. Lemus
, R. D. Sanctis
, M. D. Avexis
, T. Duong
, R. Finkel
, A. L. Frongia
, K. G. Roche
, C. Heatwole
, N. Gusset
, E. Henricson
, A. Mayhew
, C. Marchesi

A. Pasternak, A. Pechmann, M. C. Pera, I. Rubino, V. Sansone, M. Schroth, D. Trundell, V. Straub

^*Autore corrispondente per questo lavoro

University of Messina
Columbia University
Great Ormond Street Hospital for Children
University College London

Risultato della ricerca: Contributo in rivista › Articolo

Abstract

n/a

Lingua originale	Inglese
pagine (da-a)	431-436
Numero di pagine	6
Rivista	Neuromuscular Disorders
Volume	30
Numero di pubblicazione	5
DOI	https://doi.org/10.1016/j.nmd.2020.02.019
Stato di pubblicazione	Pubblicato - 2020

All Science Journal Classification (ASJC) codes

Pediatria, Perinatologia e Salute del Bambino
Neurologia
Neurologia (clinica)
Genetica (clinica)

Keywords

Activity of daily living
Caregiver burden
Health related quality of life
Quality of life
Spinal muscular atrophy

Accesso al documento

10.1016/j.nmd.2020.02.019

Altri file e collegamenti

Cita questo

Mercuri, E. M., Messina, S., Montes, J., Muntoni, F., Sansone, V. A., Antonaci, L., Civitello, M., Coratti, G., Lemus, M. D., Sanctis, R. D., Avexis, M. D., Duong, T., Finkel, R., Frongia, A. L., Roche, K. G., Heatwole, C., Gusset, N., Henricson, E., Mayhew, A., ... Straub, V. (2020). Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019. Neuromuscular Disorders, 30(5), 431-436. https://doi.org/10.1016/j.nmd.2020.02.019

@article{54f269fd2e314df8b69bcbe2b2038349,

title = "Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019",

abstract = "n/a",

keywords = "Activity of daily living, Caregiver burden, Health related quality of life, Quality of life, Spinal muscular atrophy, Activity of daily living, Caregiver burden, Health related quality of life, Quality of life, Spinal muscular atrophy",

author = "Mercuri, \{Eugenio Maria\} and S. Messina and J. Montes and F. Muntoni and Sansone, \{V. A.\} and L. Antonaci and M. Civitello and Giorgia Coratti and Lemus, \{M. D.\} and Sanctis, \{R. D.\} and Avexis, \{M. D.\} and T. Duong and R. Finkel and Frongia, \{A. L.\} and Roche, \{K. G.\} and C. Heatwole and N. Gusset and E. Henricson and A. Mayhew and C. Marchesi and A. Pasternak and A. Pechmann and Pera, \{M. C.\} and I. Rubino and V. Sansone and M. Schroth and D. Trundell and V. Straub",

year = "2020",

doi = "10.1016/j.nmd.2020.02.019",

language = "English",

volume = "30",

pages = "431--436",

journal = "Neuromuscular Disorders",

issn = "0960-8966",

publisher = "Elsevier Ltd",

number = "5",

}

Mercuri, EM, Messina, S, Montes, J, Muntoni, F, Sansone, VA, Antonaci, L, Civitello, M, Coratti, G, Lemus, MD, Sanctis, RD, Avexis, MD, Duong, T, Finkel, R, Frongia, AL, Roche, KG, Heatwole, C, Gusset, N, Henricson, E, Mayhew, A, Marchesi, C, Pasternak, A, Pechmann, A, Pera, MC, Rubino, I, Sansone, V, Schroth, M, Trundell, D & Straub, V 2020, 'Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019', Neuromuscular Disorders, vol. 30, n. 5, pagg. 431-436. https://doi.org/10.1016/j.nmd.2020.02.019

TY - JOUR

T1 - Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

AU - Mercuri, Eugenio Maria

AU - Messina, S.

AU - Montes, J.

AU - Muntoni, F.

AU - Sansone, V. A.

AU - Antonaci, L.

AU - Civitello, M.

AU - Coratti, Giorgia

AU - Lemus, M. D.

AU - Sanctis, R. D.

AU - Avexis, M. D.

AU - Duong, T.

AU - Finkel, R.

AU - Frongia, A. L.

AU - Roche, K. G.

AU - Heatwole, C.

AU - Gusset, N.

AU - Henricson, E.

AU - Mayhew, A.

AU - Marchesi, C.

AU - Pasternak, A.

AU - Pechmann, A.

AU - Pera, M. C.

AU - Rubino, I.

AU - Sansone, V.

AU - Schroth, M.

AU - Trundell, D.

AU - Straub, V.

PY - 2020

Y1 - 2020

N2 - n/a

AB - n/a

KW - Activity of daily living

KW - Caregiver burden

KW - Health related quality of life

KW - Quality of life

KW - Spinal muscular atrophy

KW - Activity of daily living

KW - Caregiver burden

KW - Health related quality of life

KW - Quality of life

KW - Spinal muscular atrophy

UR - https://publicatt.unicatt.it/handle/10807/182745

UR - https://www.scopus.com/inward/citedby.uri?partnerID=HzOxMe3b&scp=85085064158&origin=inward

UR - https://www.scopus.com/inward/record.uri?partnerID=HzOxMe3b&scp=85085064158&origin=inward

U2 - 10.1016/j.nmd.2020.02.019

DO - 10.1016/j.nmd.2020.02.019

M3 - Article

SN - 0960-8966

VL - 30

SP - 431

EP - 436

JO - Neuromuscular Disorders

JF - Neuromuscular Disorders

IS - 5

ER -

Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Abstract

All Science Journal Classification (ASJC) codes

Keywords

Accesso al documento

Altri file e collegamenti

Fingerprint

Cita questo