@article{54f269fd2e314df8b69bcbe2b2038349,
title = "Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019",
abstract = "n/a",
keywords = "Activity of daily living, Caregiver burden, Health related quality of life, Quality of life, Spinal muscular atrophy, Activity of daily living, Caregiver burden, Health related quality of life, Quality of life, Spinal muscular atrophy",
author = "Mercuri, {Eugenio Maria} and S. Messina and J. Montes and F. Muntoni and Sansone, {V. A.} and L. Antonaci and M. Civitello and Giorgia Coratti and Lemus, {M. D.} and Sanctis, {R. D.} and Avexis, {M. D.} and T. Duong and R. Finkel and Frongia, {A. L.} and Roche, {K. G.} and C. Heatwole and N. Gusset and E. Henricson and A. Mayhew and C. Marchesi and A. Pasternak and A. Pechmann and Pera, {M. C.} and I. Rubino and V. Sansone and M. Schroth and D. Trundell and V. Straub",
year = "2020",
doi = "10.1016/j.nmd.2020.02.019",
language = "English",
volume = "30",
pages = "431--436",
journal = "Neuromuscular Disorders",
issn = "0960-8966",
publisher = "Elsevier Ltd",
number = "5",
}