@article{54f269fd2e314df8b69bcbe2b2038349,
title = "Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019",
abstract = "n/a",
keywords = "Activity of daily living, Caregiver burden, Health related quality of life, Quality of life, Spinal muscular atrophy, Activity of daily living, Caregiver burden, Health related quality of life, Quality of life, Spinal muscular atrophy",
author = "Mercuri, {Eugenio Maria} and Sonia Messina and Jacqueline Montes and Francesco Muntoni and Sansone, {Valeria A.} and Laura Antonaci and Matt Civitello and Giorgia Coratti and Lemus, {Mencia De} and Sanctis, {Roberto De} and Avexis, {Marcus Droege} and Tina Duong and Richard Finkel and Frongia, {Anna Lia} and Roche, {Ksenija Gorni} and Chad Heatwole and Nicole Gusset and Erik Henricson and Anna Mayhew and Chiara Marchesi and Amy Pasternak and Astrid Pechmann and Pera, {Maria Carmela} and Ivana Rubino and Valeria Sansone and Mary Schroth and Dylan Trundell and Volker Straub",
year = "2020",
doi = "10.1016/j.nmd.2020.02.019",
language = "English",
volume = "30",
pages = "431--436",
journal = "Neuromuscular Disorders",
issn = "0960-8966",
publisher = "Elsevier Science Limited:Oxford Fulfillment Center, PO Box 800, Kidlington Oxford OX5 1DX United Kingdom:011 44 1865 843000, 011 44 1865 843699, EMAIL: asianfo@elsevier.com, tcb@elsevier.co.UK, INTERNET: http://www.elsevier.com, http://www.elsevier.com/locate/shpsa/, Fax: 011 44 1865 843010",
}