Patient and parent oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in SMA. Rome, 13 July 2019

Eugenio Maria Mercuri, Laura Antonaci, Giorgia Coratti, Anna Lia Frongia, Maria Carmela Pera, Sonia Messina, Jacqueline Montes, Francesco Muntoni, Valeria A. Sansone, Matt Civitello, Mencia De Lemus, Roberto De Sanctis, Marcus Droege Avexis, Tina Duong, Richard Finkel, Ksenija Gorni Roche, Chad Heatwole, Nicole Gusset, Erik Henricson, Anna MayhewChiara Marchesi, Amy Pasternak, Astrid Pechmann, Ivana Rubino, Valeria Sansone, Mary Schroth, Dylan Trundell, Volker Straub

Risultato della ricerca: Contributo in rivistaArticolo in rivista

Abstract

n/a
Lingua originaleEnglish
pagine (da-a)431-436
Numero di pagine6
RivistaNeuromuscular Disorders
Volume30
DOI
Stato di pubblicazionePubblicato - 2020

Keywords

  • Activity of daily living
  • Caregiver burden
  • Spinal muscular atrophy
  • Quality of life
  • Health related quality of life

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