Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

M Bertoli; G Biasini; Mt Calignano; G Celani; G De Grossi; Mc Digilio; Cc Fermariello; G Loffredo; F Luchino; Alessandra Maria Marchese; S Mazotti; B Menghi; C Razzano; C Tiano; A Zambon Hobart; Giuseppe Zampino; Giuseppe Zuccala'

doi:10.1111/j.1365-2788.2011.01432.x

Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

M Bertoli, G Biasini, Mt Calignano, G Celani, G De Grossi, Mc Digilio, Cc Fermariello, G Loffredo, F Luchino^*, Alessandra Maria Marchese, S Mazotti, B Menghi, C Razzano, C Tiano, A Zambon Hobart, Giuseppe Zampino, Giuseppe Zuccala'

^*Autore corrispondente per questo lavoro

Risultato della ricerca: Contributo in rivista › Articolo

39 Citazioni (Scopus)

Abstract

Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.

Lingua originale	Inglese
pagine (da-a)	801-820
Numero di pagine	20
Rivista	Journal of Intellectual Disability Research
Volume	55
Numero di pubblicazione	8
DOI	https://doi.org/10.1111/j.1365-2788.2011.01432.x
Stato di pubblicazione	Pubblicato - 2011

All Science Journal Classification (ASJC) codes

Riabilitazione
Discipline Umanistiche (varie)
Neurologia
Neurologia (clinica)
Psichiatria e Salute Mentale

Keywords

Activities of Daily Living
Adolescent
Adult
Age Distribution
Caregivers
Child
Community Mental Health Services
Cross-Sectional Studies
Down Syndrome
Education of Intellectually Disabled
Employment
Female
Health Services Needs and Demand
Humans
Infant
Intellectual Disability
Male
Middle Aged
Needs Assessment
Newborn
Preschool
Quality of Life
Questionnaires
Rome
Sex Distribution
Social Support
Supported
Young Adult

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Accesso al documento

10.1111/j.1365-2788.2011.01432.x

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Bertoli, M., Biasini, G., Calignano, M., Celani, G., De Grossi, G., Digilio, M., Fermariello, C., Loffredo, G., Luchino, F., Marchese, A. M., Mazotti, S., Menghi, B., Razzano, C., Tiano, C., Zambon Hobart, A., Zampino, G., & Zuccala', G. (2011). Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy. Journal of Intellectual Disability Research, 55(8), 801-820. https://doi.org/10.1111/j.1365-2788.2011.01432.x

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abstract = "Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.",

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author = "M Bertoli and G Biasini and Mt Calignano and G Celani and {De Grossi}, G and Mc Digilio and Cc Fermariello and G Loffredo and F Luchino and Marchese, {Alessandra Maria} and S Mazotti and B Menghi and C Razzano and C Tiano and {Zambon Hobart}, A and Giuseppe Zampino and Giuseppe Zuccala'",

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doi = "10.1111/j.1365-2788.2011.01432.x",

language = "English",

volume = "55",

pages = "801--820",

journal = "Journal of Intellectual Disability Research",

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Bertoli, M, Biasini, G, Calignano, M, Celani, G, De Grossi, G, Digilio, M, Fermariello, C, Loffredo, G, Luchino, F, Marchese, AM, Mazotti, S, Menghi, B, Razzano, C, Tiano, C, Zambon Hobart, A, Zampino, G & Zuccala', G 2011, 'Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy', Journal of Intellectual Disability Research, vol. 55, n. 8, pagg. 801-820. https://doi.org/10.1111/j.1365-2788.2011.01432.x

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AU - Luchino, F

AU - Marchese, Alessandra Maria

AU - Mazotti, S

AU - Menghi, B

AU - Razzano, C

AU - Tiano, C

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AU - Zuccala', Giuseppe

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Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

Abstract

All Science Journal Classification (ASJC) codes

Keywords

OSS delle Nazioni Unite

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