Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

M. Bertoli; G. Biasini; M. T. Calignano; G. Celani; G. De Grossi; M. C. Digilio; C. C. Fermariello; G. Loffredo; F. Luchino; A. Marchese; S. Mazotti; B. Menghi; C. Razzano; C. Tiano; A. Zambon Hobart; Giuseppe Zampino; G. Zuccalà

doi:10.1111/j.1365-2788.2011.01432.x

Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

M. Bertoli, G. Biasini, M. T. Calignano, G. Celani, G. De Grossi, M. C. Digilio, C. C. Fermariello, G. Loffredo, F. Luchino, A. Marchese, S. Mazotti, B. Menghi, C. Razzano, C. Tiano, A. Zambon Hobart, Giuseppe Zampino, G. Zuccalà

Risultato della ricerca: Contributo in rivista › Articolo in rivista

39 Citazioni (Scopus)

Abstract

Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.

Lingua originale	English
pagine (da-a)	801-820
Numero di pagine	20
Rivista	Journal of Intellectual Disability Research
Volume	55
DOI	https://doi.org/10.1111/j.1365-2788.2011.01432.x
Stato di pubblicazione	Pubblicato - 2011

Keywords

Activities of Daily Living
Adolescent
Adult
Age Distribution
Caregivers
Child
Child, Preschool
Community Mental Health Services
Cross-Sectional Studies
Down Syndrome
Education of Intellectually Disabled
Employment, Supported
Female
Health Services Needs and Demand
Humans
Infant
Infant, Newborn
Intellectual Disability
Male
Middle Aged
Needs Assessment
Quality of Life
Questionnaires
Rome
Sex Distribution
Social Support
Young Adult

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10.1111/j.1365-2788.2011.01432.x

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Bertoli, M., Biasini, G., Calignano, M. T., Celani, G., De Grossi, G., Digilio, M. C., Fermariello, C. C., Loffredo, G., Luchino, F., Marchese, A., Mazotti, S., Menghi, B., Razzano, C., Tiano, C., Zambon Hobart, A., Zampino, G., & Zuccalà, G. (2011). Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy. Journal of Intellectual Disability Research, 55, 801-820. https://doi.org/10.1111/j.1365-2788.2011.01432.x

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abstract = "Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.",

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author = "M. Bertoli and G. Biasini and Calignano, {M. T.} and G. Celani and {De Grossi}, G. and Digilio, {M. C.} and Fermariello, {C. C.} and G. Loffredo and F. Luchino and A. Marchese and S. Mazotti and B. Menghi and C. Razzano and C. Tiano and {Zambon Hobart}, A. and Giuseppe Zampino and G. Zuccal{\`a}",

year = "2011",

doi = "10.1111/j.1365-2788.2011.01432.x",

language = "English",

volume = "55",

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journal = "Journal of Intellectual Disability Research",

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Bertoli, M, Biasini, G, Calignano, MT, Celani, G, De Grossi, G, Digilio, MC, Fermariello, CC, Loffredo, G, Luchino, F, Marchese, A, Mazotti, S, Menghi, B, Razzano, C, Tiano, C, Zambon Hobart, A, Zampino, G & Zuccalà, G 2011, 'Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy', Journal of Intellectual Disability Research, vol. 55, pagg. 801-820. https://doi.org/10.1111/j.1365-2788.2011.01432.x

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AU - Biasini, G.

AU - Calignano, M. T.

AU - Celani, G.

AU - De Grossi, G.

AU - Digilio, M. C.

AU - Fermariello, C. C.

AU - Loffredo, G.

AU - Luchino, F.

AU - Marchese, A.

AU - Mazotti, S.

AU - Menghi, B.

AU - Razzano, C.

AU - Tiano, C.

AU - Zambon Hobart, A.

AU - Zampino, Giuseppe

AU - Zuccalà, G.

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KW - Female

KW - Health Services Needs and Demand

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KW - Infant, Newborn

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KW - Male

KW - Middle Aged

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KW - Sex Distribution

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ER -

Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

Abstract

Keywords

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