Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

M. Bertoli; G. Biasini; M. T. Calignano; G. Celani; G. De Grossi; M. C. Digilio; C. C. Fermariello; G. Loffredo; F. Luchino; A. Marchese; S. Mazotti; B. Menghi; C. Razzano; C. Tiano; A. Zambon Hobart; Giuseppe Zampino; Giuseppe Zuccala'

doi:10.1111/j.1365-2788.2011.01432.x

Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

M. Bertoli, G. Biasini, M. T. Calignano, G. Celani, G. De Grossi, M. C. Digilio, C. C. Fermariello, G. Loffredo, F. Luchino, A. Marchese, S. Mazotti, B. Menghi, C. Razzano, C. Tiano, A. Zambon Hobart, Giuseppe Zampino, Giuseppe Zuccala'

Risultato della ricerca: Contributo in rivista › Articolo in rivista

39 Citazioni (Scopus)

Abstract

Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.

Lingua originale	English
pagine (da-a)	801-820
Numero di pagine	20
Rivista	Journal of Intellectual Disability Research
Volume	55
DOI	https://doi.org/10.1111/j.1365-2788.2011.01432.x
Stato di pubblicazione	Pubblicato - 2011

Keywords

Activities of Daily Living
Adolescent
Adult
Age Distribution
Caregivers
Child
Child, Preschool
Community Mental Health Services
Cross-Sectional Studies
Down Syndrome
Education of Intellectually Disabled
Employment, Supported
Female
Health Services Needs and Demand
Humans
Infant
Infant, Newborn
Intellectual Disability
Male
Middle Aged
Needs Assessment
Quality of Life
Questionnaires
Rome
Sex Distribution
Social Support
Young Adult

OSS delle Nazioni Unite

Questo processo contribuisce al raggiungimento dei seguenti obiettivi di sviluppo sostenibile

Accesso al documento

10.1111/j.1365-2788.2011.01432.x

Altri file e collegamenti

Link a IRIS PubliCatt

Cita questo

Bertoli, M., Biasini, G., Calignano, M. T., Celani, G., De Grossi, G., Digilio, M. C., Fermariello, C. C., Loffredo, G., Luchino, F., Marchese, A., Mazotti, S., Menghi, B., Razzano, C., Tiano, C., Zambon Hobart, A., Zampino, G., & Zuccala', G. (2011). Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy. Journal of Intellectual Disability Research, 55, 801-820. https://doi.org/10.1111/j.1365-2788.2011.01432.x

@article{4dfe3bb30aff43ff81a29ed09c75f11f,

title = "Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy",

abstract = "Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.",

keywords = "Activities of Daily Living, Adolescent, Adult, Age Distribution, Caregivers, Child, Child, Preschool, Community Mental Health Services, Cross-Sectional Studies, Down Syndrome, Education of Intellectually Disabled, Employment, Supported, Female, Health Services Needs and Demand, Humans, Infant, Infant, Newborn, Intellectual Disability, Male, Middle Aged, Needs Assessment, Quality of Life, Questionnaires, Rome, Sex Distribution, Social Support, Young Adult, Activities of Daily Living, Adolescent, Adult, Age Distribution, Caregivers, Child, Child, Preschool, Community Mental Health Services, Cross-Sectional Studies, Down Syndrome, Education of Intellectually Disabled, Employment, Supported, Female, Health Services Needs and Demand, Humans, Infant, Infant, Newborn, Intellectual Disability, Male, Middle Aged, Needs Assessment, Quality of Life, Questionnaires, Rome, Sex Distribution, Social Support, Young Adult",

author = "M. Bertoli and G. Biasini and Calignano, {M. T.} and G. Celani and {De Grossi}, G. and Digilio, {M. C.} and Fermariello, {C. C.} and G. Loffredo and F. Luchino and A. Marchese and S. Mazotti and B. Menghi and C. Razzano and C. Tiano and {Zambon Hobart}, A. and Giuseppe Zampino and Giuseppe Zuccala'",

year = "2011",

doi = "10.1111/j.1365-2788.2011.01432.x",

language = "English",

volume = "55",

pages = "801--820",

journal = "Journal of Intellectual Disability Research",

issn = "0964-2633",

publisher = "Blackwell Science Limited:PO Box 88, Oxford OX2 0NE United Kingdom:011 44 1865 776868, 011 44 1865 206038, EMAIL: [email protected], INTERNET: http://www.blackwell-science.com, Fax: 011 44 1865 721205",

}

Bertoli, M, Biasini, G, Calignano, MT, Celani, G, De Grossi, G, Digilio, MC, Fermariello, CC, Loffredo, G, Luchino, F, Marchese, A, Mazotti, S, Menghi, B, Razzano, C, Tiano, C, Zambon Hobart, A, Zampino, G & Zuccala', G 2011, 'Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy', Journal of Intellectual Disability Research, vol. 55, pagg. 801-820. https://doi.org/10.1111/j.1365-2788.2011.01432.x

TY - JOUR

T1 - Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

AU - Bertoli, M.

AU - Biasini, G.

AU - Calignano, M. T.

AU - Celani, G.

AU - De Grossi, G.

AU - Digilio, M. C.

AU - Fermariello, C. C.

AU - Loffredo, G.

AU - Luchino, F.

AU - Marchese, A.

AU - Mazotti, S.

AU - Menghi, B.

AU - Razzano, C.

AU - Tiano, C.

AU - Zambon Hobart, A.

AU - Zampino, Giuseppe

AU - Zuccala', Giuseppe

PY - 2011

Y1 - 2011

N2 - Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.

AB - Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.

KW - Activities of Daily Living

KW - Adolescent

KW - Adult

KW - Age Distribution

KW - Caregivers

KW - Child

KW - Child, Preschool

KW - Community Mental Health Services

KW - Cross-Sectional Studies

KW - Down Syndrome

KW - Education of Intellectually Disabled

KW - Employment, Supported

KW - Female

KW - Health Services Needs and Demand

KW - Humans

KW - Infant

KW - Infant, Newborn

KW - Intellectual Disability

KW - Male

KW - Middle Aged

KW - Needs Assessment

KW - Quality of Life

KW - Questionnaires

KW - Rome

KW - Sex Distribution

KW - Social Support

KW - Young Adult

KW - Activities of Daily Living

KW - Adolescent

KW - Adult

KW - Age Distribution

KW - Caregivers

KW - Child

KW - Child, Preschool

KW - Community Mental Health Services

KW - Cross-Sectional Studies

KW - Down Syndrome

KW - Education of Intellectually Disabled

KW - Employment, Supported

KW - Female

KW - Health Services Needs and Demand

KW - Humans

KW - Infant

KW - Infant, Newborn

KW - Intellectual Disability

KW - Male

KW - Middle Aged

KW - Needs Assessment

KW - Quality of Life

KW - Questionnaires

KW - Rome

KW - Sex Distribution

KW - Social Support

KW - Young Adult

UR - http://hdl.handle.net/10807/4842

U2 - 10.1111/j.1365-2788.2011.01432.x

DO - 10.1111/j.1365-2788.2011.01432.x

M3 - Article

SN - 0964-2633

VL - 55

SP - 801

EP - 820

JO - Journal of Intellectual Disability Research

JF - Journal of Intellectual Disability Research

ER -

Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

Abstract

Keywords

OSS delle Nazioni Unite

Accesso al documento

Altri file e collegamenti

Fingerprint

Cita questo