Narrative exploration of uncontrolled asthma: insights from patients and healthcare professionals in a cross-sectional study

Alessio Piraino, Vincenzo Pennisi, Eleonora Volpato, Alfio Pennisi, Paolo I. Banfi, Salvatore D'Antonio, Stefano Centanni, Filomena Bugliaro, Antonietta Cappuccio, Luca Cavalieri, Mattia Ramaccia, Roberta Termini, Maria Giulia Marini, Mattia Ramaccia

Risultato della ricerca: Contributo in rivistaContributo a convegno

Abstract

Background: Despite effective inhalation therapy, uncontrolled asthma remains prevalent. Narrative Medicine (NM) seeks to understand illness experiences linguistically, providing a framework to enhance healthcare. Aims: To gather narratives from uncontrolled asthma patients and Health Care Professionals (HCPs), exploring treatment decisions, adherence factors, emotions, economic burdens, and comprehensive care. Methods: A cross-sectional NM study was conducted in Italy (February-December 2023), involving 135 uncontrolled asthma patients [54.7% male; mean age:56.7 years] and 47 HCPs [64.9% male; mean age: 54.3 years]. A mixed-method approach was adopted to examine themes, language, emotions, and narrative classifications. Results: The patients reported an average illness duration of 4.46 years, with worsening occurring over the last 20.9 months. Pulmonologists (83% of HCPs) took a primary role in diagnosing and treating the disease in 96.1% of patients. Additionally, 51 patients reported incurring extra costs in the treatment of their asthma. The most frequent reported feelings were tiredness (25.96%) and feeling suffocated (11.53%). Once they started treatment, although feeling better physically, they mostly experience emotion of "submission/dependence" on the drug (28%), followed by "fear" (21%) and "serenity/joy" (21%). The HCPs, mainly pulmonologists (83%), emphasized the need for increased specialist and general practitioner awareness, including information dissemination, attention to prescriptions, phenotyping, targeted therapy, and paediatric considerations. Conclusions: The findings enhance patient understanding, personalize interventions, and highlight factors influencing therapeutic adherence.
Lingua originaleEnglish
pagine (da-a)N/A-N/A
RivistaEuropean Respiratory Journal
Volume64
DOI
Stato di pubblicazionePubblicato - 2024
EventoEuropean Respiratory Society (ERS) Congress 2024 - Vienna, Austria
Durata: 7 set 202411 set 2024

Keywords

  • Narrative Medicine
  • Adherence
  • Uncontrolled Asthma
  • Severe Asthma

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