Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study

Paola Mosconi; Anna Roberto; Nicoletta Cerana; Nicoletta Colombo; Florence Didier; Maurizio D’Incalci; Domenica Lorusso; Fedro Alessandro Peccatori; Grazia Artioli; Luigi Cavanna; Rita Ceccherini; Giovanna Cirigliano; Giovanni Cirigliano; Giuseppe Comerci; Gianluca Comerci; Gennaro Cormio; Alessandra Crippa; Alberto Farolfi; Antonio Febbraro; Donatella Giardina; Stefano Greggi; Maurizio Lalle; Mariateresa Lapresa; Marina Marzola; Maria Cristina Marzola; Carla Merisio; Anna Maria Mosconi; Michele Peiretti; Giuseppe Ricci; Graziana Ronzino; Giovanni Scambia; Paolo Scollo; Federica Sina; Giulia Carlo Stella; Federica Tomao; Patrizia Vici; Paolo Zola

doi:10.1186/s13048-022-00970-w

Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study

Paola Mosconi, Anna Roberto, Nicoletta Cerana, Nicoletta Colombo, Florence Didier, Maurizio D’Incalci, Domenica Lorusso, Fedro Alessandro Peccatori, Grazia Artioli, Luigi Cavanna, Rita Ceccherini, Giovanna Cirigliano, Giovanni Cirigliano, Giuseppe Comerci, Gianluca Comerci, Gennaro Cormio, Alessandra Crippa, Alberto Farolfi, Antonio Febbraro, Donatella GiardinaStefano Greggi, Maurizio Lalle, Mariateresa Lapresa, Marina Marzola, Maria Cristina Marzola, Carla Merisio, Anna Maria Mosconi, Michele Peiretti, Giuseppe Ricci, Graziana Ronzino, Giovanni Scambia, Paolo Scollo, Federica Sina, Giulia Carlo Stella, Federica Tomao, Patrizia Vici, Paolo Zola

Risultato della ricerca: Contributo in rivista › Articolo in rivista

Abstract

Despite several initiatives by research groups, regulatory authorities, and scientific associations to engage citizens/patients in clinical research, there are still obstacles to participation. Among the main discouraging aspects are incomplete understanding of the concepts related to a clinical trial, and the scant, sometimes confused, explanations given. This observational, cross-sectional multicenter study investigated knowledge, attitudes and trust in clinical research. We conducted a survey among women with ovarian cancer at their first follow-up visit or first therapy session, treated in centers belonging to the Mario Negri Gynecologic Oncology (MaNGO) and Multicenter Italian Trials in Ovarian Cancer (MITO) groups. A questionnaire on knowledge, attitudes and experience was assembled ad hoc after a literature review and a validation process involving patients of the Alliance against Ovarian Cancer (ACTO).

Lingua originale	English
pagine (da-a)	1-9
Numero di pagine	9
Rivista	Journal of Ovarian Research
Volume	15
DOI	https://doi.org/10.1186/s13048-022-00970-w
Stato di pubblicazione	Pubblicato - 2022

Keywords

ACTO study
ovarian cancer

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Mosconi, P., Roberto, A., Cerana, N., Colombo, N., Didier, F., D’Incalci, M., Lorusso, D., Peccatori, F. A., Artioli, G., Cavanna, L., Ceccherini, R., Cirigliano, G., Cirigliano, G., Comerci, G., Comerci, G., Cormio, G., Crippa, A., Farolfi, A., Febbraro, A., ... Zola, P. (2022). Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study. Journal of Ovarian Research, 15, 1-9. https://doi.org/10.1186/s13048-022-00970-w

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title = "Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study",

abstract = "Despite several initiatives by research groups, regulatory authorities, and scientific associations to engage citizens/patients in clinical research, there are still obstacles to participation. Among the main discouraging aspects are incomplete understanding of the concepts related to a clinical trial, and the scant, sometimes confused, explanations given. This observational, cross-sectional multicenter study investigated knowledge, attitudes and trust in clinical research. We conducted a survey among women with ovarian cancer at their first follow-up visit or first therapy session, treated in centers belonging to the Mario Negri Gynecologic Oncology (MaNGO) and Multicenter Italian Trials in Ovarian Cancer (MITO) groups. A questionnaire on knowledge, attitudes and experience was assembled ad hoc after a literature review and a validation process involving patients of the Alliance against Ovarian Cancer (ACTO).",

keywords = "ACTO study, ovarian cancer, ACTO study, ovarian cancer",

author = "Paola Mosconi and Anna Roberto and Nicoletta Cerana and Nicoletta Colombo and Florence Didier and Maurizio D{\textquoteright}Incalci and Domenica Lorusso and Peccatori, {Fedro Alessandro} and Grazia Artioli and Luigi Cavanna and Rita Ceccherini and Giovanna Cirigliano and Giovanni Cirigliano and Giuseppe Comerci and Gianluca Comerci and Gennaro Cormio and Alessandra Crippa and Alberto Farolfi and Antonio Febbraro and Donatella Giardina and Stefano Greggi and Maurizio Lalle and Mariateresa Lapresa and Marina Marzola and Marzola, {Maria Cristina} and Carla Merisio and Mosconi, {Anna Maria} and Michele Peiretti and Giuseppe Ricci and Graziana Ronzino and Giovanni Scambia and Paolo Scollo and Federica Sina and Stella, {Giulia Carlo} and Federica Tomao and Patrizia Vici and Paolo Zola",

year = "2022",

doi = "10.1186/s13048-022-00970-w",

language = "English",

volume = "15",

pages = "1--9",

journal = "Journal of Ovarian Research",

issn = "1757-2215",

publisher = "BioMed Central",

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Mosconi, P, Roberto, A, Cerana, N, Colombo, N, Didier, F, D’Incalci, M, Lorusso, D, Peccatori, FA, Artioli, G, Cavanna, L, Ceccherini, R, Cirigliano, G, Cirigliano, G, Comerci, G, Comerci, G, Cormio, G, Crippa, A, Farolfi, A, Febbraro, A, Giardina, D, Greggi, S, Lalle, M, Lapresa, M, Marzola, M, Marzola, MC, Merisio, C, Mosconi, AM, Peiretti, M, Ricci, G, Ronzino, G, Scambia, G, Scollo, P, Sina, F, Stella, GC, Tomao, F, Vici, P & Zola, P 2022, 'Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study', Journal of Ovarian Research, vol. 15, pagg. 1-9. https://doi.org/10.1186/s13048-022-00970-w

TY - JOUR

T1 - Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study

AU - Mosconi, Paola

AU - Roberto, Anna

AU - Cerana, Nicoletta

AU - Colombo, Nicoletta

AU - Didier, Florence

AU - D’Incalci, Maurizio

AU - Lorusso, Domenica

AU - Peccatori, Fedro Alessandro

AU - Artioli, Grazia

AU - Cavanna, Luigi

AU - Ceccherini, Rita

AU - Cirigliano, Giovanna

AU - Cirigliano, Giovanni

AU - Comerci, Giuseppe

AU - Comerci, Gianluca

AU - Cormio, Gennaro

AU - Crippa, Alessandra

AU - Farolfi, Alberto

AU - Febbraro, Antonio

AU - Giardina, Donatella

AU - Greggi, Stefano

AU - Lalle, Maurizio

AU - Lapresa, Mariateresa

AU - Marzola, Marina

AU - Marzola, Maria Cristina

AU - Merisio, Carla

AU - Mosconi, Anna Maria

AU - Peiretti, Michele

AU - Ricci, Giuseppe

AU - Ronzino, Graziana

AU - Scambia, Giovanni

AU - Scollo, Paolo

AU - Sina, Federica

AU - Stella, Giulia Carlo

AU - Tomao, Federica

AU - Vici, Patrizia

AU - Zola, Paolo

PY - 2022

Y1 - 2022

N2 - Despite several initiatives by research groups, regulatory authorities, and scientific associations to engage citizens/patients in clinical research, there are still obstacles to participation. Among the main discouraging aspects are incomplete understanding of the concepts related to a clinical trial, and the scant, sometimes confused, explanations given. This observational, cross-sectional multicenter study investigated knowledge, attitudes and trust in clinical research. We conducted a survey among women with ovarian cancer at their first follow-up visit or first therapy session, treated in centers belonging to the Mario Negri Gynecologic Oncology (MaNGO) and Multicenter Italian Trials in Ovarian Cancer (MITO) groups. A questionnaire on knowledge, attitudes and experience was assembled ad hoc after a literature review and a validation process involving patients of the Alliance against Ovarian Cancer (ACTO).

AB - Despite several initiatives by research groups, regulatory authorities, and scientific associations to engage citizens/patients in clinical research, there are still obstacles to participation. Among the main discouraging aspects are incomplete understanding of the concepts related to a clinical trial, and the scant, sometimes confused, explanations given. This observational, cross-sectional multicenter study investigated knowledge, attitudes and trust in clinical research. We conducted a survey among women with ovarian cancer at their first follow-up visit or first therapy session, treated in centers belonging to the Mario Negri Gynecologic Oncology (MaNGO) and Multicenter Italian Trials in Ovarian Cancer (MITO) groups. A questionnaire on knowledge, attitudes and experience was assembled ad hoc after a literature review and a validation process involving patients of the Alliance against Ovarian Cancer (ACTO).

KW - ACTO study

KW - ovarian cancer

KW - ACTO study

KW - ovarian cancer

UR - http://hdl.handle.net/10807/283316

U2 - 10.1186/s13048-022-00970-w

DO - 10.1186/s13048-022-00970-w

M3 - Article

SN - 1757-2215

VL - 15

SP - 1

EP - 9

JO - Journal of Ovarian Research

JF - Journal of Ovarian Research

ER -

Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study

Abstract

Keywords

OSS delle Nazioni Unite

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