Intrathecal nusinersen treatment for SMA in a dedicated neuromuscular clinic: an example of multidisciplinary and integrated care.

Eugenio Maria Mercuri, Lorena Mancini, VA Sansone, E Albamonte, F Salmin, J Casiraghi, A Pirola, M Bettinelli, F Rao, N Tovaglieri, F Fedeli, P Stoia, M Heinen, V Cozzi, E Carraro, C Lunetta, Bari A Di

Risultato della ricerca: Contributo in rivistaArticolo in rivista

Abstract

Nusinsersen is now available in Italy for all SMA types. We describe the experience with intrathecal treatment with nusinersen in 50 patients with SMA at the NEMO Center (NEuroMuscular Omniservice Clinical Center) in Milan, a neuromuscular patient-centered clinic hosted within Niguarda Hospital, a National Public General Hospital. Our results indicate that the pathway of care described outweighs the burden due to the repeated intrathecal injections. Irrespective of age and severity, the treatment is feasible, accessible, and replicable provided that there is a multidisciplinary team having experience and training in SMA.
Lingua originaleEnglish
pagine (da-a)3622-3629
Numero di pagine8
RivistaNeurological Sciences
Stato di pubblicazionePubblicato - 2018

Keywords

  • SMA

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