TY - JOUR
T1 - International classification of functioning, disability and health in children with congenital central hypoventilation syndrome
AU - Montirosso, Rosario
AU - Provenzi, Livio
AU - Borgatti, Renato
AU - Morandi, Francesco
AU - D'Aloisio, Chiara
AU - Berna, Anna
PY - 2009
Y1 - 2009
N2 - PURPOSES: The main aim of this study is to examine the functioning of children with congenital central hypoventilation syndrome (CCHS), a rare disorder of respiratory control associated with physiological and anatomical manifestations of a generalised autonomic nervous system dysfunction, using WHO's International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY).
METHOD: The data of 26 children, (F = 17) aged 1.5-17.5 years, were collected. Data were analysed in the following four age groups: <3, 3-6, 7-12 and 13-18 years, using only the ICF-CY questionnaires' cross-age items.
RESULTS: In the body functions, component breathing and paying attention were common problems for four age groups. In the activity and participation component, all children, except adolescents, showed problems with language. Furthermore, problems in social interaction were evident for all age ranges, except the youngest. Finally, in the environmental factors component, parents reported limitations concerning the natural environment and human-made changes to the environment that were common to all ages.
CONCLUSIONS: The study supports the usefulness of supplementing diagnostic classifications with functional classifications to obtain complete information on health-related conditions in children with CCHS.
AB - PURPOSES: The main aim of this study is to examine the functioning of children with congenital central hypoventilation syndrome (CCHS), a rare disorder of respiratory control associated with physiological and anatomical manifestations of a generalised autonomic nervous system dysfunction, using WHO's International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY).
METHOD: The data of 26 children, (F = 17) aged 1.5-17.5 years, were collected. Data were analysed in the following four age groups: <3, 3-6, 7-12 and 13-18 years, using only the ICF-CY questionnaires' cross-age items.
RESULTS: In the body functions, component breathing and paying attention were common problems for four age groups. In the activity and participation component, all children, except adolescents, showed problems with language. Furthermore, problems in social interaction were evident for all age ranges, except the youngest. Finally, in the environmental factors component, parents reported limitations concerning the natural environment and human-made changes to the environment that were common to all ages.
CONCLUSIONS: The study supports the usefulness of supplementing diagnostic classifications with functional classifications to obtain complete information on health-related conditions in children with CCHS.
KW - Congenital central hypoventilation syndrome
KW - child development
KW - environmental health
KW - health care quality
KW - Congenital central hypoventilation syndrome
KW - child development
KW - environmental health
KW - health care quality
UR - http://hdl.handle.net/10807/61312
UR - http://informahealthcare.com/doi/abs/10.3109/09638280903317807
U2 - 10.3109/09638280903317807
DO - 10.3109/09638280903317807
M3 - Article
VL - 31
SP - S144-S152
JO - Disability and Rehabilitation
JF - Disability and Rehabilitation
SN - 0963-8288
ER -