Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

Ketty Peris; Emanuele Berti; Maria Teresa Congedo; Rosa Maria Alba Costanzo; Katia Elisabetta Provenzano; Margherita Romanelli; Matteo Simonacci; Gianfranco Valenti; Iris Zalaudek; S. Ribero; P. Dapavo; C. Casalegno; Mauro Alaibac; Giuseppe Argenziano; Nicola Giovanni Arpaia; Giovanni Bagnoni; Emilio Berti; Luca Bianchi; Daniela Bianchini; Piergiacomo Calzavara Pinton; Serafinella Patrizia Cannavò; Maurizio Congedo; Salvatore Corrao; Antonio Costanzo; Francesco Cusano; Salvo Dattola; Stefano Dattoli; Salvatore Deledda; Massimo Donini; Gabriella Fabbrocini; Maria Teresa Fierro; Caterina Foti; Antonia Gerarda Galluccio; Alessandro Gatti; Carlo René Girardelli; Giampiero Girolomoni; Giuseppe Lemme; Piergiorgio Malagoli; Giovanna Malara; Santo Raffaele Mercuri; Giuseppe Micali; Maria Antonia Montesu; Annamaria Offidani; Manuela Papini; Aurora Parodi; Annalisa Patrizi; Giovanni Pellacani; Angelo Piccirillo; Paolo Pigatto; Nicola Pimpinelli; Concetta Potenza; Eugenio Provenzano; Marco Romanelli; Franco Rongioletti; Paola Savoia; Marco Simonacci; Riccardo Sirna; Giuseppe Stinco; Giancarlo Valenti

doi:10.1111/jdv.15828

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

Ketty Peris, Emanuele Berti, Maria Teresa Congedo, Rosa Maria Alba Costanzo, Katia Elisabetta Provenzano, Margherita Romanelli, Matteo Simonacci, Gianfranco Valenti, Iris Zalaudek, S. Ribero, P. Dapavo, C. Casalegno, Mauro Alaibac, Giuseppe Argenziano, Nicola Giovanni Arpaia, Giovanni Bagnoni, Emilio Berti, Luca Bianchi, Daniela Bianchini, Piergiacomo Calzavara PintonSerafinella Patrizia Cannavò, Maurizio Congedo, Salvatore Corrao, Antonio Costanzo, Francesco Cusano, Salvo Dattola, Stefano Dattoli, Salvatore Deledda, Massimo Donini, Gabriella Fabbrocini, Maria Teresa Fierro, Caterina Foti, Antonia Gerarda Galluccio, Alessandro Gatti, Carlo René Girardelli, Giampiero Girolomoni, Giuseppe Lemme, Piergiorgio Malagoli, Giovanna Malara, Santo Raffaele Mercuri, Giuseppe Micali, Maria Antonia Montesu, Annamaria Offidani, Manuela Papini, Aurora Parodi, Annalisa Patrizi, Giovanni Pellacani, Angelo Piccirillo, Paolo Pigatto, Nicola Pimpinelli, Concetta Potenza, Eugenio Provenzano, Marco Romanelli, Franco Rongioletti, Paola Savoia, Marco Simonacci, Riccardo Sirna, Giuseppe Stinco, Giancarlo Valenti

Risultato della ricerca: Contributo in rivista › Articolo in rivista

Abstract

Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

Lingua originale	English
pagine (da-a)	7-9
Numero di pagine	3
Rivista	Journal of the European Academy of Dermatology and Venereology
Volume	33
DOI	https://doi.org/10.1111/jdv.15828
Stato di pubblicazione	Pubblicato - 2019

Keywords

hidradenitis suppurativa

Accesso al documento

10.1111/jdv.15828

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Peris, K., Berti, E., Congedo, M. T., Costanzo, R. M. A., Provenzano, K. E., Romanelli, M., Simonacci, M., Valenti, G., Zalaudek, I., Ribero, S., Dapavo, P., Casalegno, C., Alaibac, M., Argenziano, G., Arpaia, N. G., Bagnoni, G., Berti, E., Bianchi, L., Bianchini, D., ... Valenti, G. (2019). Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light. Journal of the European Academy of Dermatology and Venereology, 33, 7-9. https://doi.org/10.1111/jdv.15828

Peris, Ketty ; Berti, Emanuele ; Congedo, Maria Teresa ; Costanzo, Rosa Maria Alba ; Provenzano, Katia Elisabetta ; Romanelli, Margherita ; Simonacci, Matteo ; Valenti, Gianfranco ; Zalaudek, Iris ; Ribero, S. ; Dapavo, P. ; Casalegno, C. ; Alaibac, Mauro ; Argenziano, Giuseppe ; Arpaia, Nicola Giovanni ; Bagnoni, Giovanni ; Berti, Emilio ; Bianchi, Luca ; Bianchini, Daniela ; Calzavara Pinton, Piergiacomo ; Cannavò, Serafinella Patrizia ; Congedo, Maurizio ; Corrao, Salvatore ; Costanzo, Antonio ; Cusano, Francesco ; Dattola, Salvo ; Dattoli, Stefano ; Deledda, Salvatore ; Donini, Massimo ; Fabbrocini, Gabriella ; Teresa Fierro, Maria ; Foti, Caterina ; Galluccio, Antonia Gerarda ; Gatti, Alessandro ; René Girardelli, Carlo ; Girolomoni, Giampiero ; Lemme, Giuseppe ; Malagoli, Piergiorgio ; Malara, Giovanna ; Mercuri, Santo Raffaele ; Micali, Giuseppe ; Montesu, Maria Antonia ; Offidani, Annamaria ; Papini, Manuela ; Parodi, Aurora ; Patrizi, Annalisa ; Pellacani, Giovanni ; Piccirillo, Angelo ; Pigatto, Paolo ; Pimpinelli, Nicola ; Potenza, Concetta ; Provenzano, Eugenio ; Romanelli, Marco ; Rongioletti, Franco ; Savoia, Paola ; Simonacci, Marco ; Sirna, Riccardo ; Stinco, Giuseppe ; Valenti, Giancarlo. / Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light. In: Journal of the European Academy of Dermatology and Venereology. 2019 ; Vol. 33. pagg. 7-9.

@article{761181a56a38411ca4c68cd700818388,

title = "Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light",

abstract = "Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients{\textquoteright} life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients{\textquoteright} association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.",

keywords = "hidradenitis suppurativa, hidradenitis suppurativa",

author = "Ketty Peris and Emanuele Berti and Congedo, {Maria Teresa} and Costanzo, {Rosa Maria Alba} and Provenzano, {Katia Elisabetta} and Margherita Romanelli and Matteo Simonacci and Gianfranco Valenti and Iris Zalaudek and S. Ribero and P. Dapavo and C. Casalegno and Mauro Alaibac and Giuseppe Argenziano and Arpaia, {Nicola Giovanni} and Giovanni Bagnoni and Emilio Berti and Luca Bianchi and Daniela Bianchini and {Calzavara Pinton}, Piergiacomo and Cannav{\`o}, {Serafinella Patrizia} and Maurizio Congedo and Salvatore Corrao and Antonio Costanzo and Francesco Cusano and Salvo Dattola and Stefano Dattoli and Salvatore Deledda and Massimo Donini and Gabriella Fabbrocini and {Teresa Fierro}, Maria and Caterina Foti and Galluccio, {Antonia Gerarda} and Alessandro Gatti and {Ren{\'e} Girardelli}, Carlo and Giampiero Girolomoni and Giuseppe Lemme and Piergiorgio Malagoli and Giovanna Malara and Mercuri, {Santo Raffaele} and Giuseppe Micali and Montesu, {Maria Antonia} and Annamaria Offidani and Manuela Papini and Aurora Parodi and Annalisa Patrizi and Giovanni Pellacani and Angelo Piccirillo and Paolo Pigatto and Nicola Pimpinelli and Concetta Potenza and Eugenio Provenzano and Marco Romanelli and Franco Rongioletti and Paola Savoia and Marco Simonacci and Riccardo Sirna and Giuseppe Stinco and Giancarlo Valenti",

year = "2019",

doi = "10.1111/jdv.15828",

language = "English",

volume = "33",

pages = "7--9",

journal = "Journal of the European Academy of Dermatology and Venereology",

issn = "0926-9959",

publisher = "Elsevier BV:PO Box 211, 1000 AE Amsterdam Netherlands:011 31 20 4853757, 011 31 20 4853642, 011 31 20 4853641, EMAIL: nlinfo-f@elsevier.nl, INTERNET: http://www.elsevier.nl, Fax: 011 31 20 4853598",

}

Peris, K, Berti, E, Congedo, MT, Costanzo, RMA, Provenzano, KE, Romanelli, M, Simonacci, M, Valenti, G, Zalaudek, I, Ribero, S, Dapavo, P, Casalegno, C, Alaibac, M, Argenziano, G, Arpaia, NG, Bagnoni, G, Berti, E, Bianchi, L, Bianchini, D, Calzavara Pinton, P, Cannavò, SP, Congedo, M, Corrao, S, Costanzo, A, Cusano, F, Dattola, S, Dattoli, S, Deledda, S, Donini, M, Fabbrocini, G, Teresa Fierro, M, Foti, C, Galluccio, AG, Gatti, A, René Girardelli, C, Girolomoni, G, Lemme, G, Malagoli, P, Malara, G, Mercuri, SR, Micali, G, Montesu, MA, Offidani, A, Papini, M, Parodi, A, Patrizi, A, Pellacani, G, Piccirillo, A, Pigatto, P, Pimpinelli, N, Potenza, C, Provenzano, E, Romanelli, M, Rongioletti, F, Savoia, P, Simonacci, M, Sirna, R, Stinco, G & Valenti, G 2019, 'Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light', Journal of the European Academy of Dermatology and Venereology, vol. 33, pagg. 7-9. https://doi.org/10.1111/jdv.15828

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light. / Peris, Ketty; Berti, Emanuele; Congedo, Maria Teresa; Costanzo, Rosa Maria Alba; Provenzano, Katia Elisabetta; Romanelli, Margherita; Simonacci, Matteo; Valenti, Gianfranco; Zalaudek, Iris; Ribero, S.; Dapavo, P.; Casalegno, C.; Alaibac, Mauro; Argenziano, Giuseppe; Arpaia, Nicola Giovanni; Bagnoni, Giovanni; Berti, Emilio; Bianchi, Luca; Bianchini, Daniela; Calzavara Pinton, Piergiacomo; Cannavò, Serafinella Patrizia; Congedo, Maurizio; Corrao, Salvatore; Costanzo, Antonio; Cusano, Francesco; Dattola, Salvo; Dattoli, Stefano; Deledda, Salvatore; Donini, Massimo; Fabbrocini, Gabriella; Teresa Fierro, Maria; Foti, Caterina; Galluccio, Antonia Gerarda; Gatti, Alessandro; René Girardelli, Carlo; Girolomoni, Giampiero; Lemme, Giuseppe; Malagoli, Piergiorgio; Malara, Giovanna; Mercuri, Santo Raffaele; Micali, Giuseppe; Montesu, Maria Antonia; Offidani, Annamaria; Papini, Manuela; Parodi, Aurora; Patrizi, Annalisa; Pellacani, Giovanni; Piccirillo, Angelo; Pigatto, Paolo; Pimpinelli, Nicola; Potenza, Concetta; Provenzano, Eugenio; Romanelli, Marco; Rongioletti, Franco; Savoia, Paola; Simonacci, Marco; Sirna, Riccardo; Stinco, Giuseppe; Valenti, Giancarlo.

In: Journal of the European Academy of Dermatology and Venereology, Vol. 33, 2019, pag. 7-9.

Risultato della ricerca: Contributo in rivista › Articolo in rivista

TY - JOUR

T1 - Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

AU - Peris, Ketty

AU - Berti, Emanuele

AU - Congedo, Maria Teresa

AU - Costanzo, Rosa Maria Alba

AU - Provenzano, Katia Elisabetta

AU - Romanelli, Margherita

AU - Simonacci, Matteo

AU - Valenti, Gianfranco

AU - Zalaudek, Iris

AU - Ribero, S.

AU - Dapavo, P.

AU - Casalegno, C.

AU - Alaibac, Mauro

AU - Argenziano, Giuseppe

AU - Arpaia, Nicola Giovanni

AU - Bagnoni, Giovanni

AU - Berti, Emilio

AU - Bianchi, Luca

AU - Bianchini, Daniela

AU - Calzavara Pinton, Piergiacomo

AU - Cannavò, Serafinella Patrizia

AU - Congedo, Maurizio

AU - Corrao, Salvatore

AU - Costanzo, Antonio

AU - Cusano, Francesco

AU - Dattola, Salvo

AU - Dattoli, Stefano

AU - Deledda, Salvatore

AU - Donini, Massimo

AU - Fabbrocini, Gabriella

AU - Teresa Fierro, Maria

AU - Foti, Caterina

AU - Galluccio, Antonia Gerarda

AU - Gatti, Alessandro

AU - René Girardelli, Carlo

AU - Girolomoni, Giampiero

AU - Lemme, Giuseppe

AU - Malagoli, Piergiorgio

AU - Malara, Giovanna

AU - Mercuri, Santo Raffaele

AU - Micali, Giuseppe

AU - Montesu, Maria Antonia

AU - Offidani, Annamaria

AU - Papini, Manuela

AU - Parodi, Aurora

AU - Patrizi, Annalisa

AU - Pellacani, Giovanni

AU - Piccirillo, Angelo

AU - Pigatto, Paolo

AU - Pimpinelli, Nicola

AU - Potenza, Concetta

AU - Provenzano, Eugenio

AU - Romanelli, Marco

AU - Rongioletti, Franco

AU - Savoia, Paola

AU - Simonacci, Marco

AU - Sirna, Riccardo

AU - Stinco, Giuseppe

AU - Valenti, Giancarlo

PY - 2019

Y1 - 2019

N2 - Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

AB - Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

KW - hidradenitis suppurativa

UR - http://hdl.handle.net/10807/168638

U2 - 10.1111/jdv.15828

DO - 10.1111/jdv.15828

M3 - Article

VL - 33

SP - 7

EP - 9

JO - Journal of the European Academy of Dermatology and Venereology

JF - Journal of the European Academy of Dermatology and Venereology

SN - 0926-9959

ER -