Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

Ketty Peris, Emanuele Berti, Maria Teresa Congedo, Rosa Maria Alba Costanzo, Katia Elisabetta Provenzano, Margherita Romanelli, Matteo Simonacci, Gianfranco Valenti, Iris Zalaudek, S. Ribero, P. Dapavo, C. Casalegno, Mauro Alaibac, Giuseppe Argenziano, Nicola Giovanni Arpaia, Giovanni Bagnoni, Emilio Berti, Luca Bianchi, Daniela Bianchini, Piergiacomo Calzavara PintonSerafinella Patrizia Cannavò, Maurizio Congedo, Salvatore Corrao, Antonio Costanzo, Francesco Cusano, Salvo Dattola, Stefano Dattoli, Salvatore Deledda, Massimo Donini, Gabriella Fabbrocini, Maria Teresa Fierro, Caterina Foti, Antonia Gerarda Galluccio, Alessandro Gatti, Carlo René Girardelli, Giampiero Girolomoni, Giuseppe Lemme, Piergiorgio Malagoli, Giovanna Malara, Santo Raffaele Mercuri, Giuseppe Micali, Maria Antonia Montesu, Annamaria Offidani, Manuela Papini, Aurora Parodi, Annalisa Patrizi, Giovanni Pellacani, Angelo Piccirillo, Paolo Pigatto, Nicola Pimpinelli, Concetta Potenza, Eugenio Provenzano, Marco Romanelli, Franco Rongioletti, Paola Savoia, Marco Simonacci, Riccardo Sirna, Giuseppe Stinco, Giancarlo Valenti

Risultato della ricerca: Contributo in rivistaArticolo in rivista

Abstract

Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.
Lingua originaleEnglish
pagine (da-a)7-9
Numero di pagine3
RivistaJournal of the European Academy of Dermatology and Venereology
Volume33
DOI
Stato di pubblicazionePubblicato - 2019

Keywords

  • hidradenitis suppurativa

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