Abstract
The different and seemingly unrelated practices of ICT devices used to collect and
share personal and scientific data within networked communities, and the organized
storage of human genetic samples and information—namely biobanking—have
merged with another recent epistemic and social phenomenon, namely scientists and
citizens collaborating as "peers" in creating knowledge (or peer-production of
knowledge).
These different dimensions can be found in joint initiatives where scientists-andcitizens
use genetic information and ICT as powerful ways to gain more control over
their health and the environment. While this kind of initiative usually takes place only
after rights have been infringed (or are put at risk)—as the two cases presented in the
paper show—, collaborative scientists-and-citizens' knowledge should be institutionally
allowed to complement and corroborate official knowledge supporting policies.
Lingua originale | English |
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pagine (da-a) | N/A-N/A |
Rivista | Science and Engineering Ethics |
Volume | N/A |
DOI | |
Stato di pubblicazione | Pubblicato - 2015 |
Keywords
- ICT
- health and environment
- peer-production of knowledge