Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy

A Mayhew; Es Mazzone; M Eagle; T Duong; M Ash; V Decostre; M Vandenhauwe; K Klingels; J Florence; M Main; F Bianco; E Henrikson; L Servais; G Campion; E Vroom; V Ricotti; N Goemans; C Mcdonald; Eugenio Maria Mercuri

doi:10.1111/dmcn.12213

Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy

A Mayhew
, Es Mazzone
, M Eagle
, T Duong
, M Ash
, V Decostre
, M Vandenhauwe
, K Klingels
, J Florence
, M Main
, F Bianco
, E Henrikson
, L Servais
, G Campion
, E Vroom
, V Ricotti
, N Goemans
, C Mcdonald
, Eugenio Maria Mercuri^*

^*Autore corrispondente per questo lavoro

Risultato della ricerca: Contributo in rivista › Articolo

120 Citazioni (Scopus)

Abstract

An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).

Lingua originale	Inglese
pagine (da-a)	1038-1045
Numero di pagine	8
Rivista	Developmental Medicine and Child Neurology
Volume	55
Numero di pubblicazione	11
DOI	https://doi.org/10.1111/dmcn.12213
Stato di pubblicazione	Pubblicato - 2013

All Science Journal Classification (ASJC) codes

Pediatria, Perinatologia e Salute del Bambino
Neuroscienze dello Sviluppo
Neurologia (clinica)

Keywords

Activities of Daily Living
Disability Evaluation
Duchenne
Humans
Movement Disorders
Muscular Dystrophy
Psychometrics
Reproducibility of Results
Sensitivity and Specificity
Upper Extremity
Walking

Accesso al documento

10.1111/dmcn.12213

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Mayhew, A., Mazzone, E., Eagle, M., Duong, T., Ash, M., Decostre, V., Vandenhauwe, M., Klingels, K., Florence, J., Main, M., Bianco, F., Henrikson, E., Servais, L., Campion, G., Vroom, E., Ricotti, V., Goemans, N., Mcdonald, C., & Mercuri, E. M. (2013). Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 55(11), 1038-1045. https://doi.org/10.1111/dmcn.12213

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abstract = "An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).",

keywords = "Activities of Daily Living, Disability Evaluation, Duchenne, Humans, Movement Disorders, Muscular Dystrophy, Psychometrics, Reproducibility of Results, Sensitivity and Specificity, Upper Extremity, Walking, Activities of Daily Living, Disability Evaluation, Duchenne, Humans, Movement Disorders, Muscular Dystrophy, Psychometrics, Reproducibility of Results, Sensitivity and Specificity, Upper Extremity, Walking",

author = "A Mayhew and Es Mazzone and M Eagle and T Duong and M Ash and V Decostre and M Vandenhauwe and K Klingels and J Florence and M Main and F Bianco and E Henrikson and L Servais and G Campion and E Vroom and V Ricotti and N Goemans and C Mcdonald and Mercuri, \{Eugenio Maria\}",

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Mayhew, A, Mazzone, E, Eagle, M, Duong, T, Ash, M, Decostre, V, Vandenhauwe, M, Klingels, K, Florence, J, Main, M, Bianco, F, Henrikson, E, Servais, L, Campion, G, Vroom, E, Ricotti, V, Goemans, N, Mcdonald, C & Mercuri, EM 2013, 'Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy', Developmental Medicine and Child Neurology, vol. 55, n. 11, pagg. 1038-1045. https://doi.org/10.1111/dmcn.12213

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AU - Mayhew, A

AU - Mazzone, Es

AU - Eagle, M

AU - Duong, T

AU - Ash, M

AU - Decostre, V

AU - Vandenhauwe, M

AU - Klingels, K

AU - Florence, J

AU - Main, M

AU - Bianco, F

AU - Henrikson, E

AU - Servais, L

AU - Campion, G

AU - Vroom, E

AU - Ricotti, V

AU - Goemans, N

AU - Mcdonald, C

AU - Mercuri, Eugenio Maria

PY - 2013

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N2 - An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).

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KW - Disability Evaluation

KW - Duchenne

KW - Humans

KW - Movement Disorders

KW - Muscular Dystrophy

KW - Psychometrics

KW - Reproducibility of Results

KW - Sensitivity and Specificity

KW - Upper Extremity

KW - Walking

KW - Activities of Daily Living

KW - Disability Evaluation

KW - Duchenne

KW - Humans

KW - Movement Disorders

KW - Muscular Dystrophy

KW - Psychometrics

KW - Reproducibility of Results

KW - Sensitivity and Specificity

KW - Upper Extremity

KW - Walking

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ER -

Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy

Abstract

All Science Journal Classification (ASJC) codes

Keywords

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