@article{b1b447e42baf4a899d849702b87caf72,
title = "Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy",
abstract = "An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).",
keywords = "Activities of Daily Living, Disability Evaluation, Humans, Movement Disorders, Muscular Dystrophy, Duchenne, Psychometrics, Reproducibility of Results, Sensitivity and Specificity, Upper Extremity, Walking, Activities of Daily Living, Disability Evaluation, Humans, Movement Disorders, Muscular Dystrophy, Duchenne, Psychometrics, Reproducibility of Results, Sensitivity and Specificity, Upper Extremity, Walking",
author = "Anna Mayhew and Mazzone, {Elena S} and Michelle Eagle and Tina Duong and Maria Ash and Valerie Decostre and Marlene Vandenhauwe and Katrijn Klingels and Julaine Florence and Marion Main and Flaviana Bianco and Erik Henrikson and Laurent Servais and Giles Campion and Elizabeth Vroom and Valeria Ricotti and Natalie Goemans and Craig Mcdonald and Mercuri, {Eugenio Maria}",
year = "2013",
doi = "10.1111/dmcn.12213",
language = "English",
volume = "55",
pages = "1038--1045",
journal = "DEVELOPMENTAL MEDICINE & CHILD NEUROLOGY",
issn = "1469-8749",
publisher = "[Cambridge, UK] : Cambridge University Press ; Oxford : Blackwell",
}