Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy

Eugenio Maria Mercuri, Anna Mayhew, Michelle Eagle, Tina Duong, Maria Ash, Valerie Decostre, Marlene Vandenhauwe, Katrijn Klingels, Julaine Florence, Marion Main, Erik Henrikson, Laurent Servais, Giles Campion, Elizabeth Vroom, Valeria Ricotti, Natalie Goemans, Craig Mcdonald

Risultato della ricerca: Contributo in rivistaArticolo in rivista

120 Citazioni (Scopus)


An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).
Lingua originaleEnglish
pagine (da-a)1038-1045
Numero di pagine8
Stato di pubblicazionePubblicato - 2013


  • Activities of Daily Living
  • Disability Evaluation
  • Humans
  • Movement Disorders
  • Muscular Dystrophy, Duchenne
  • Psychometrics
  • Reproducibility of Results
  • Sensitivity and Specificity
  • Upper Extremity
  • Walking


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