Background. Hidradenitis suppurativa (HS) is a chronic, debilitating disease with a considerable
effect on patient quality of life. Its clinical severity can be measured using different scoring
systems; however few of them include patient-centred parameters.
Objective. To create a new scoring system for HS that includes a quality-of-life instrument, the
Methods. This post-hoc analysis was carried out within the framework of a multicentre,
longitudinal, epidemiologic study conducted over 9 months on quality-of-life aspects of HS. The
new severity score was created using as reference a question from the Subject Satisfaction
Questionnaire (SSQ) concerning the severity of HS as evaluated by the patient. Associated
variables were selected using univariable and multivariable logistic regression models. The
discriminant capabilities of the final model and of the final score were evaluated by the area under
the receiver operating characteristic curve and the Hosmer-Lemeshow test.
Results. The study population included 308 patients with HS of any severity grade. According to
the results of the regression models, the variables associated with the reference SSQ measure were
number of inflammatory nodules, abscesses and draining fistulas; the HIDRAdisk score; and the
number of subumbilical lesions. The HIDRAscore is obtained by the sum of the scores associated
with the number of these parameters. Possible scores range from 0 to 10.
Conclusion. The HIDRAscore is a new scoring system for HS severity which, in addition to the
clinical evaluation by the physician, includes a validated patient-reported outcome measure, the
- HIDRADENITIS SUPPURATIVA