A critical review of patient and parent caregiver oriented tools to assess health-related quality of life, activity of daily living and caregiver burden in spinal muscular atrophy

Sonia Messina, Anna Lia Frongia, Laura Antonaci, Maria Carmela Pera, Giorgia Coratti, Marika Pane, Amy Pasternak, Matthew Civitello, Jacqueline Montes, Anna Mayhew, Richard Finkel, Francesco Muntoni, Eugenio Maria Mercuri

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Nursing and Health Professions