Utilizzo di Advate nel trattamento dell’emofilia A: impatti organizzativo-gestionali ed economici e qualità di vita

Translated title of the contribution: [Autom. eng. transl.] Use of Advate in the treatment of hemophilia A: organizational-managerial and economic impacts and quality of life

Maria Lucia Specchia, Gualtiero Ricciardi, Silvio Capizzi, Maria Assunta Veneziano, Chiara De Waure, Giuseppe La Torre, Flavia Kheiraoui

Research output: Contribution to journalArticle

Abstract

[Autom. eng. transl.] The treatment of the haemophilic patient requires a multidisciplinary approach, with a high complexity of care and resource consumption, so the epidemiological and assistance data relating to the various forms of coagulopathies, in the different Regions and on the national territory, represent a fundamental aspect in planning and programming health. The regional and national registers established therefore constitute a fundamental tool for public health and a priority for interventions aimed at improving the management of congenital coagulopathies. Due to the specific skills required, an articulated organization of haemophilia diagnosis and treatment centers is required. They must also be able to provide a variety of services, such as 24-hour on-call service, admission, check-ups, psychological counseling, home treatment training, counseling and genetic diagnosis. In reality, assistance to hemophiliacs can not only not be considered homogeneous throughout the national territory, but also within the same Regions there are often differences between the various provinces. The need therefore emerges for interventions aimed at the pursuit and continuous improvement of the quality of the assistance provided, with particular reference to the technological equipment and professionalism present in the Centers. Prophylaxis treatment, unlike on-demand treatment, helps prevent the onset of debilitating complications and phenomena of limiting social life from the earliest age. It provides for continuous and regular administration of the drug several times a week and can be performed at home as part of a home care program. In the presence of a careful and scrupulous adherence to the therapy prescribed by the Centers of reference, this care modality can guarantee the haemophilic patient the conduct of a completely normal life. However, in view of the possible barriers that stand in the way of its effective implementation, the home nursing assistance activity should be characterized by the use of a team of specialized and ad hoc trained nurses, capable of instructing and supervising the patient and the family infusion / autoinfusion, until complete autonomy in the management of the disease is reached. With this in mind, in order to implement the care offer, combining therapeutic needs with greater simplicity in accessing services, Baxter makes a package of totally free home care services available to haemophilia patients and public health (assistance service). home to the haemophilic patient - Home Clinical Assistance (HCA); home physiotherapy service - Home Rehabilitation Assistance (HRA); drug delivery service - Home Delivery Service; "B-nect / mobile patient care" multimedia platform). The collaboration between the NHS and the pharmaceutical company is an example of synergy aimed at the interest of patients, the rationalization / containment of health expenditure and the pursuit of a just "sustainable" profit. This synergy must be established among all stakeholders, in order to achieve global assistance, which sees the patient at the center of the system. Along these lines, Baxter has introduced, for the first time in the treatment of haemophilia, a risk sharing policy for co-participation with the NHS in costs in the case of implementation of immunotolerance programs with Advate. Finally, several studies show that haemophilia has a decisive influence on the QoL of haemophilic patients, especially for complications to it
Translated title of the contribution[Autom. eng. transl.] Use of Advate in the treatment of hemophilia A: organizational-managerial and economic impacts and quality of life
Original languageItalian
Pages (from-to)68-88
Number of pages21
JournalItalian Journal of Public Health
Publication statusPublished - 2011

Keywords

  • Emofilia
  • HTA
  • Management

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