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Stress-related vulnerability and usefulness of healthcare education in Parkinson's disease: The perception of a group of family caregivers, a cross-sectional study

  • Enrico Di Stasio*
  • , Emanuele Di Simone
  • , Nicoletta Di Simone
  • , Arianna Galeti
  • , Daniele Donati
  • , Chiara Guidotti
  • , Daniela Tartaglini
  • , Massimiliano Chiarini
  • , Massimo Marano
  • , Michela Cammarano
  • , Marco Di Muzio
  • , Claudia Cianfrocca
  • *Corresponding author
  • University of Rome Tor Vergata
  • University of Rome La Sapienza
  • Universita Campus Bio-Medico di Roma
  • University Campus Bio-Medico of Rome

Research output: Contribution to journalArticlepeer-review

Abstract

Parkinson's Disease is associated with a high assistive complexity, thus generating in caregivers a burden proportional to the intensity of the care provided. This study aims to evaluate whether the stress-related level of caregivers is related to their perception of the need for healthcare education. A cross-sectional study was conducted on 69 family caregivers that completed the Stress-related Vulnerability Scale (SVS scale) with a tool of proposed interventions stratified according to caregivers' need as “nothing”, “somewhat”, “moderately” and “extremely”. A direct association between the SVS scale and the perception of the usefulness of interventions was detected, and significant differences were observed for “Caregivers tele-support group” and “Peer-led support group” interventions, thus suggesting an important role for caregivers' emotional status in considering of training courses. Caregivers are split between low vulnerability, with minimal perception of training need, and high burden state with the acute necessity of support to manage patients.
Original languageEnglish
Pages (from-to)151186-151186
Number of pages1
JournalApplied Nursing Research
Volume51
DOIs
Publication statusPublished - 2020

Keywords

  • Caregiver burden
  • Caregiver need
  • Chronic disease
  • Healthcare education

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