Registries versus tertiary care centers: How do we measure standards of care in Duchenne muscular dystrophy?

Eugenio Maria Mercuri; Giovanni Baranello; Roberta Battini; A. Berardinelli; Enrico Silvio Bertini; C. Bruno; G. P. Comi; Adele D'Amico; G. D'Angelo; K. Gorni; S. Messina; T. Mongini; Marika Pane; E. Pegoraro; A. Pini; L. Politano; S. Previtali; F. Ricci; V. Sansone; G. L. Vita

doi:10.1016/j.nmd.2016.04.001

Registries versus tertiary care centers: How do we measure standards of care in Duchenne muscular dystrophy?

Eugenio Maria Mercuri
, Giovanni Baranello
, Roberta Battini
, A. Berardinelli
, Enrico Silvio Bertini
, C. Bruno
, G. P. Comi
, Adele D'Amico
, G. D'Angelo
, K. Gorni
, S. Messina
, T. Mongini
, Marika Pane
, E. Pegoraro
, A. Pini
, L. Politano
, S. Previtali
, F. Ricci
, V. Sansone
, G. L. Vita

IRCCS Fondazione Istituto Neurologico Casimiro Mondino - Pavia
IRCCS Istituto Giannina Gaslini - Genova
Scientific Research Institute Eugenio Medea
NEMO Clinical Centre
University of Messina
University of Turin
University of Padua
IRCCS Istituto delle Scienze Neurologiche di Bologna
University of Naples Federico II
San Raffaele Scientific Institute

Research output: Contribution to journal › Article

2 Citations (Scopus)

Abstract

N/A

Original language	English
Pages (from-to)	261-263
Number of pages	3
Journal	Neuromuscular Disorders
Volume	26
Issue number	4-5
DOIs	https://doi.org/10.1016/j.nmd.2016.04.001
Publication status	Published - 2016

All Science Journal Classification (ASJC) codes

Pediatrics, Perinatology, and Child Health
Neurology
Clinical Neurology
Genetics(clinical)

Keywords

Child
Cohort Studies
Duchenne
Genetics (clinical)
Humans
Italy
Male
Muscular Dystrophy
Neurology
Neurology (clinical)
Pediatrics
Perinatology and Child Health
Preschool
Registries
Standard of Care
Steroids
Tertiary Care Centers

Access to Document

10.1016/j.nmd.2016.04.001

Cite this

Mercuri, E. M., Baranello, G., Battini, R., Berardinelli, A., Bertini, E. S., Bruno, C., Comi, G. P., D'Amico, A., D'Angelo, G., Gorni, K., Messina, S., Mongini, T., Pane, M., Pegoraro, E., Pini, A., Politano, L., Previtali, S., Ricci, F., Sansone, V., & Vita, G. L. (2016). Registries versus tertiary care centers: How do we measure standards of care in Duchenne muscular dystrophy? Neuromuscular Disorders, 26(4-5), 261-263. https://doi.org/10.1016/j.nmd.2016.04.001

@article{0d8d69506b8444a4acc3284d25acaa3a,

title = "Registries versus tertiary care centers: How do we measure standards of care in Duchenne muscular dystrophy?",

abstract = "N/A",

keywords = "Child, Cohort Studies, Duchenne, Genetics (clinical), Humans, Italy, Male, Muscular Dystrophy, Neurology, Neurology (clinical), Pediatrics, Perinatology and Child Health, Preschool, Registries, Standard of Care, Steroids, Tertiary Care Centers, Child, Cohort Studies, Duchenne, Genetics (clinical), Humans, Italy, Male, Muscular Dystrophy, Neurology, Neurology (clinical), Pediatrics, Perinatology and Child Health, Preschool, Registries, Standard of Care, Steroids, Tertiary Care Centers",

author = "Mercuri, \{Eugenio Maria\} and Giovanni Baranello and Roberta Battini and A. Berardinelli and Bertini, \{Enrico Silvio\} and C. Bruno and Comi, \{G. P.\} and Adele D'Amico and G. D'Angelo and K. Gorni and S. Messina and T. Mongini and Marika Pane and E. Pegoraro and A. Pini and L. Politano and S. Previtali and F. Ricci and V. Sansone and Vita, \{G. L.\}",

year = "2016",

doi = "10.1016/j.nmd.2016.04.001",

language = "English",

volume = "26",

pages = "261--263",

journal = "Neuromuscular Disorders",

issn = "0960-8966",

publisher = "Elsevier Ltd",