Needs and challenges of daily life for people with Down syndrome residing in the city of Rome, Italy

Giuseppe Zampino, M. Bertoli, G. Biasini, M. T. Calignano, G. Celani, G. De Grossi, M. C. Digilio, C. C. Fermariello, G. Loffredo, F. Luchino, A. Marchese, S. Mazotti, B. Menghi, C. Razzano, C. Tiano, A. Zambon Hobart

Research output: Contribution to journalArticle

39 Citations (Scopus)

Abstract

Population-based surveys on the quality of life of people with Down syndrome (DS) are difficult to perform because of ethical and legal policies regarding privacy and confidential information, but they are essential for service planning. Little is known about the sample size and variability of quality of life of people with DS living in the city of Rome, which has a population of 2.7 million inhabitants. The aim of the present study is to explore the needs and challenges in health, social integration and daily life, of people with DS living in Rome.
Original languageEnglish
Pages (from-to)801-820
Number of pages20
JournalJournal of Intellectual Disability Research
Volume55
DOIs
Publication statusPublished - 2011

Keywords

  • Activities of Daily Living
  • Adolescent
  • Adult
  • Age Distribution
  • Caregivers
  • Child
  • Child, Preschool
  • Community Mental Health Services
  • Cross-Sectional Studies
  • Down Syndrome
  • Education of Intellectually Disabled
  • Employment, Supported
  • Female
  • Health Services Needs and Demand
  • Humans
  • Infant
  • Infant, Newborn
  • Intellectual Disability
  • Male
  • Middle Aged
  • Needs Assessment
  • Quality of Life
  • Questionnaires
  • Rome
  • Sex Distribution
  • Social Support
  • Young Adult

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