TY - JOUR
T1 - Locally advanced breast cancer (LABC) and delayed care: a qualitative analysis of psychosocial factors
AU - Saita, Emanuela
AU - Acquati, Chiara
AU - Molgora, Sara
AU - Vagnini, Denise
AU - Valenti, Francesco
AU - Stratta, Gregorio
AU - Grassi, Massimo Maria
PY - 2023
Y1 - 2023
N2 - The literature has extensively documented how delayed access to health care services in the context of cancer can result from subjective characteristics, dysfunctional coping styles, barriers to care, or procrastination. However, limited research has investigated the psychosocial experience of women diagnosed with Locally Advanced Breast Cancer (LABC). This qualitative study aimed at understanding cognitive, emotional and relational factors associated with delayed access to care and treatment decision-making. In-depth interviews with 14 Italian women were conducted. A thematic analysis of elementary contexts using T-LAB was used to identify the association between emerging clusters and participants’ coping styles as measured by the Mini-MAC. Five clusters were identified: ‘relationships’, ‘ineluctability’, ‘disease’, ‘surgery’, and ‘diagnosis’. The ‘relationships’ cluster was characterized by elevated rates of Fighting Spirit (p < 0.01) while Anxious Preoccupation was associated with ‘surgery’ (p < 0.01). Findings contribute to explain individual and relational variables related to delay seeking care of LABC patients by illustrating the interplay of personal motivations and social networks’ characteristics. Evidence from this work expands current understanding of the interplay of factors contributing to delays in seeking medical attention and may be utilized to inform strategies to timely identify women at greater risk.
AB - The literature has extensively documented how delayed access to health care services in the context of cancer can result from subjective characteristics, dysfunctional coping styles, barriers to care, or procrastination. However, limited research has investigated the psychosocial experience of women diagnosed with Locally Advanced Breast Cancer (LABC). This qualitative study aimed at understanding cognitive, emotional and relational factors associated with delayed access to care and treatment decision-making. In-depth interviews with 14 Italian women were conducted. A thematic analysis of elementary contexts using T-LAB was used to identify the association between emerging clusters and participants’ coping styles as measured by the Mini-MAC. Five clusters were identified: ‘relationships’, ‘ineluctability’, ‘disease’, ‘surgery’, and ‘diagnosis’. The ‘relationships’ cluster was characterized by elevated rates of Fighting Spirit (p < 0.01) while Anxious Preoccupation was associated with ‘surgery’ (p < 0.01). Findings contribute to explain individual and relational variables related to delay seeking care of LABC patients by illustrating the interplay of personal motivations and social networks’ characteristics. Evidence from this work expands current understanding of the interplay of factors contributing to delays in seeking medical attention and may be utilized to inform strategies to timely identify women at greater risk.
KW - Locally advanced breast cancer
KW - delayed care
KW - qualitative analysis
KW - Locally advanced breast cancer
KW - delayed care
KW - qualitative analysis
UR - http://hdl.handle.net/10807/204840
U2 - 10.1080/13548506.2022.2073379
DO - 10.1080/13548506.2022.2073379
M3 - Article
SN - 1354-8506
VL - 28
SP - 408
EP - 418
JO - PSYCHOLOGY, HEALTH & MEDICINE
JF - PSYCHOLOGY, HEALTH & MEDICINE
ER -