Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

S. Ribero; P. Dapavo; C. Casalegno; Mauro Alaibac; Giuseppe Argenziano; Nicola Giovanni Arpaia; Giovanni Bagnoni; Emilio Berti; Emanuele Berti; Luca Bianchi; Daniela Bianchini; Piergiacomo Calzavara Pinton; Serafinella Patrizia Cannavò; Maurizio Congedo; Maria Teresa Congedo; Salvatore Corrao; Antonio Costanzo; Rosa Maria Alba Costanzo; Francesco Cusano; Salvo Dattola; Stefano Dattoli; Salvatore Deledda; Massimo Donini; Gabriella Fabbrocini; Maria Teresa Fierro; Caterina Foti; Antonia Gerarda Galluccio; Alessandro Gatti; Carlo René Girardelli; Giampiero Girolomoni; Giuseppe Lemme; Piergiorgio Malagoli; Giovanna Malara; Santo Raffaele Mercuri; Giuseppe Micali; Maria Antonia Montesu; Annamaria Offidani; Manuela Papini; Aurora Parodi; Annalisa Patrizi; Giovanni Pellacani; Ketty Peris; Angelo Piccirillo; Paolo Pigatto; Nicola Pimpinelli; Concetta Potenza; Eugenio Provenzano; Katia Elisabetta Provenzano; Marco Romanelli; Margherita Romanelli; Franco Rongioletti; Paola Savoia; Marco Simonacci; Matteo Simonacci; Riccardo Sirna; Giuseppe Stinco; Giancarlo Valenti; Gianfranco Valenti; Iris Zalaudek

doi:10.1111/jdv.15828

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

S. Ribero, P. Dapavo, C. Casalegno, Mauro Alaibac, Giuseppe Argenziano, Nicola Giovanni Arpaia, Giovanni Bagnoni, Emilio Berti, Emanuele Berti, Luca Bianchi, Daniela Bianchini, Piergiacomo Calzavara Pinton, Serafinella Patrizia Cannavò, Maurizio Congedo, Maria Teresa Congedo, Salvatore Corrao, Antonio Costanzo, Rosa Maria Alba Costanzo, Francesco Cusano, Salvo DattolaStefano Dattoli, Salvatore Deledda, Massimo Donini, Gabriella Fabbrocini, Maria Teresa Fierro, Caterina Foti, Antonia Gerarda Galluccio, Alessandro Gatti, Carlo René Girardelli, Giampiero Girolomoni, Giuseppe Lemme, Piergiorgio Malagoli, Giovanna Malara, Santo Raffaele Mercuri, Giuseppe Micali, Maria Antonia Montesu, Annamaria Offidani, Manuela Papini, Aurora Parodi, Annalisa Patrizi, Giovanni Pellacani, Ketty Peris, Angelo Piccirillo, Paolo Pigatto, Nicola Pimpinelli, Concetta Potenza, Eugenio Provenzano, Katia Elisabetta Provenzano, Marco Romanelli, Margherita Romanelli, Franco Rongioletti, Paola Savoia, Marco Simonacci, Matteo Simonacci, Riccardo Sirna, Giuseppe Stinco, Giancarlo Valenti, Gianfranco Valenti, Iris Zalaudek

University of Turin

Research output: Contribution to journal › Article

Abstract

Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

Original language	English
Pages (from-to)	7-9
Number of pages	3
Journal	Journal of the European Academy of Dermatology and Venereology
Volume	33
DOIs	https://doi.org/10.1111/jdv.15828
Publication status	Published - 2019

Keywords

hidradenitis suppurativa

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10.1111/jdv.15828

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Ribero, S., Dapavo, P., Casalegno, C., Alaibac, M., Argenziano, G., Arpaia, N. G., Bagnoni, G., Berti, E., Berti, E., Bianchi, L., Bianchini, D., Calzavara Pinton, P., Cannavò, S. P., Congedo, M., Congedo, M. T., Corrao, S., Costanzo, A., Costanzo, R. M. A., Cusano, F., ... Zalaudek, I. (2019). Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light. Journal of the European Academy of Dermatology and Venereology, 33, 7-9. https://doi.org/10.1111/jdv.15828

@article{761181a56a38411ca4c68cd700818388,

title = "Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light",

abstract = "Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients{\textquoteright} life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients{\textquoteright} association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.",

keywords = "hidradenitis suppurativa, hidradenitis suppurativa",

author = "S. Ribero and P. Dapavo and C. Casalegno and Mauro Alaibac and Giuseppe Argenziano and Arpaia, {Nicola Giovanni} and Giovanni Bagnoni and Emilio Berti and Emanuele Berti and Luca Bianchi and Daniela Bianchini and {Calzavara Pinton}, Piergiacomo and Cannav{\`o}, {Serafinella Patrizia} and Maurizio Congedo and Congedo, {Maria Teresa} and Salvatore Corrao and Antonio Costanzo and Costanzo, {Rosa Maria Alba} and Francesco Cusano and Salvo Dattola and Stefano Dattoli and Salvatore Deledda and Massimo Donini and Gabriella Fabbrocini and {Teresa Fierro}, Maria and Caterina Foti and Galluccio, {Antonia Gerarda} and Alessandro Gatti and {Ren{\'e} Girardelli}, Carlo and Giampiero Girolomoni and Giuseppe Lemme and Piergiorgio Malagoli and Giovanna Malara and Mercuri, {Santo Raffaele} and Giuseppe Micali and Montesu, {Maria Antonia} and Annamaria Offidani and Manuela Papini and Aurora Parodi and Annalisa Patrizi and Giovanni Pellacani and Ketty Peris and Angelo Piccirillo and Paolo Pigatto and Nicola Pimpinelli and Concetta Potenza and Eugenio Provenzano and Provenzano, {Katia Elisabetta} and Marco Romanelli and Margherita Romanelli and Franco Rongioletti and Paola Savoia and Marco Simonacci and Matteo Simonacci and Riccardo Sirna and Giuseppe Stinco and Giancarlo Valenti and Gianfranco Valenti and Iris Zalaudek",

year = "2019",

doi = "10.1111/jdv.15828",

language = "English",

volume = "33",

pages = "7--9",

journal = "Journal of the European Academy of Dermatology and Venereology",

issn = "0926-9959",

publisher = "Elsevier BV:PO Box 211, 1000 AE Amsterdam Netherlands:011 31 20 4853757, 011 31 20 4853642, 011 31 20 4853641, EMAIL: [email protected], INTERNET: http://www.elsevier.nl, Fax: 011 31 20 4853598",

}

Ribero, S, Dapavo, P, Casalegno, C, Alaibac, M, Argenziano, G, Arpaia, NG, Bagnoni, G, Berti, E, Berti, E, Bianchi, L, Bianchini, D, Calzavara Pinton, P, Cannavò, SP, Congedo, M, Congedo, MT, Corrao, S, Costanzo, A, Costanzo, RMA, Cusano, F, Dattola, S, Dattoli, S, Deledda, S, Donini, M, Fabbrocini, G, Teresa Fierro, M, Foti, C, Galluccio, AG, Gatti, A, René Girardelli, C, Girolomoni, G, Lemme, G, Malagoli, P, Malara, G, Mercuri, SR, Micali, G, Montesu, MA, Offidani, A, Papini, M, Parodi, A, Patrizi, A, Pellacani, G, Peris, K, Piccirillo, A, Pigatto, P, Pimpinelli, N, Potenza, C, Provenzano, E, Provenzano, KE, Romanelli, M, Romanelli, M, Rongioletti, F, Savoia, P, Simonacci, M, Simonacci, M, Sirna, R, Stinco, G, Valenti, G, Valenti, G & Zalaudek, I 2019, 'Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light', Journal of the European Academy of Dermatology and Venereology, vol. 33, pp. 7-9. https://doi.org/10.1111/jdv.15828

TY - JOUR

T1 - Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

AU - Ribero, S.

AU - Dapavo, P.

AU - Casalegno, C.

AU - Alaibac, Mauro

AU - Argenziano, Giuseppe

AU - Arpaia, Nicola Giovanni

AU - Bagnoni, Giovanni

AU - Berti, Emilio

AU - Berti, Emanuele

AU - Bianchi, Luca

AU - Bianchini, Daniela

AU - Calzavara Pinton, Piergiacomo

AU - Cannavò, Serafinella Patrizia

AU - Congedo, Maurizio

AU - Congedo, Maria Teresa

AU - Corrao, Salvatore

AU - Costanzo, Antonio

AU - Costanzo, Rosa Maria Alba

AU - Cusano, Francesco

AU - Dattola, Salvo

AU - Dattoli, Stefano

AU - Deledda, Salvatore

AU - Donini, Massimo

AU - Fabbrocini, Gabriella

AU - Teresa Fierro, Maria

AU - Foti, Caterina

AU - Galluccio, Antonia Gerarda

AU - Gatti, Alessandro

AU - René Girardelli, Carlo

AU - Girolomoni, Giampiero

AU - Lemme, Giuseppe

AU - Malagoli, Piergiorgio

AU - Malara, Giovanna

AU - Mercuri, Santo Raffaele

AU - Micali, Giuseppe

AU - Montesu, Maria Antonia

AU - Offidani, Annamaria

AU - Papini, Manuela

AU - Parodi, Aurora

AU - Patrizi, Annalisa

AU - Pellacani, Giovanni

AU - Peris, Ketty

AU - Piccirillo, Angelo

AU - Pigatto, Paolo

AU - Pimpinelli, Nicola

AU - Potenza, Concetta

AU - Provenzano, Eugenio

AU - Provenzano, Katia Elisabetta

AU - Romanelli, Marco

AU - Romanelli, Margherita

AU - Rongioletti, Franco

AU - Savoia, Paola

AU - Simonacci, Marco

AU - Simonacci, Matteo

AU - Sirna, Riccardo

AU - Stinco, Giuseppe

AU - Valenti, Giancarlo

AU - Valenti, Gianfranco

AU - Zalaudek, Iris

PY - 2019

Y1 - 2019

N2 - Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

AB - Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients’ life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy. Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease. Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients’ association. Results: Results confirm that a better communication has a strong impact on the disease awareness. Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

KW - hidradenitis suppurativa

UR - http://hdl.handle.net/10807/168638

U2 - 10.1111/jdv.15828

DO - 10.1111/jdv.15828

M3 - Article

SN - 0926-9959

VL - 33

SP - 7

EP - 9

JO - Journal of the European Academy of Dermatology and Venereology

JF - Journal of the European Academy of Dermatology and Venereology

ER -

Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

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Keywords

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