Development of the Performance of the Upper Limb module for Duchenne muscular dystrophy

Eugenio Maria Mercuri, Anna Mayhew, Michelle Eagle, Tina Duong, Maria Ash, Valerie Decostre, Marlene Vandenhauwe, Katrijn Klingels, Julaine Florence, Marion Main, Erik Henrikson, Laurent Servais, Giles Campion, Elizabeth Vroom, Valeria Ricotti, Natalie Goemans, Craig Mcdonald

Research output: Contribution to journalArticle

120 Citations (Scopus)

Abstract

An international Clinical Outcomes Group consisting of clinicians, scientists, patient advocacy groups, and industries identified a need for a scale to measure motor performance of the upper limb. We report the steps leading to the development of the Performance of the Upper Limb (PUL), a tool specifically designed for assessing upper limb function in ambulant and non-ambulant patients with Duchenne muscular dystrophy (DMD).
Original languageEnglish
Pages (from-to)1038-1045
Number of pages8
JournalDEVELOPMENTAL MEDICINE & CHILD NEUROLOGY
Volume55
DOIs
Publication statusPublished - 2013

Keywords

  • Activities of Daily Living
  • Disability Evaluation
  • Humans
  • Movement Disorders
  • Muscular Dystrophy, Duchenne
  • Psychometrics
  • Reproducibility of Results
  • Sensitivity and Specificity
  • Upper Extremity
  • Walking

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