Chronic Myeloid Leukemia Patient’s Voice About the Experience of Treatment-Free Remission Failure: Results From the Italian Sub-Study of ENESTPath Exploring the Emotional Experience of Patients During Different Phases of a Clinical Trial

Simona Sica, Lidia Borghi, Sara Galimberti, Claudia Baratè, Massimiliano Bonifacio, Enrico Capochiani, Antonio Cuneo, Franca Falzetti, Alessandra Iurlo, Francesca Lunghi, Claudia Minotto, Ester Maria Orlandi, Giovanna Rege-Cambrin, Sharon Supekar, Jens Haenig, Elena Vegni

Research output: Contribution to journalArticle

Abstract

Background: The main objective of this study is to gain further insights on how chronic myeloid leukemia (CML) patients involved in an interventional clinical trial with the purpose of reaching treatment free remission (TFR) phase, perceived and experienced TFR failure. TFR failure was defined for the individual patient as either not being eligible for drug discontinuation or as having relapse in the TFR phase with reintroduction of nilotinib treatment. Methods: Using a qualitative approach, out of 25 patients with CML who experienced TFR failure 14 were interviewed. Patients’ views and experiences were explored using in-depth interviews, analyzed using the Interpretative Phenomenological Analysis (IPA).
Original languageEnglish
Pages (from-to)329-342
Number of pages14
JournalFrontiers in Psychology
DOIs
Publication statusPublished - 2019

Keywords

  • Results From the Italian Sub-Study of ENESTPath Exploring the Emotional Experience of Patients During

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